We went to Caleb’s bi-weekly Belfast follow up on Friday. He has been experiencing some severe GI issues and his local oncologist was concerned that this could be the start of graft vs host disease (GVHD). On the way home Caleb’s Boston oncologist called saying he shared the concern and wanted Caleb to go to the ER to start treatment….in Boston. So, as we were preparing for Ellie’s birthday party, he had to go. Caleb spent the night in the ER at Brigham & Women’s Hospital, he doesn’t have a room yet but will be admitted, hopefully today. They have started IV steroids to treat the assumed GVHD. They will do some more testing to confirm GVHD on Monday. There are treatments for GVHD and it is a common complication with any sort of transplant. He will likely be in Boston for a few weeks. This is not where he wants to be, but we are very confident in the team of doctors working with him.
calebmcgary 